Undiagnosed Childrens’ Day Instagram Challenge

Day 23 “A Challenge”

Right so I’m a bit behind!  Anyway last night I was getting ready for my twice weekly 5K run.  I’m not a “natural athletic type” I wish I was, I’m more your walking, horse riding, being outdoors type…. And then your lying on the sofa with a beer and a box set type!  But, although I only sort of enjoy it… at a push,  feel better after I’ve run, so I’ve decided it’s just what I do to look after myself feel less irritable and sleep better.

(I’ve really enjoyed being part of ParkRun every Saturday morning)


Undiagnosed Childrens’ Day Instagram Challenge

Day 22 Family

We don’t have many photos of us altogether, something I need to work on I think!  This was taken nearly 8 years ago in Spain.  It was our first “go” at taking Jacob on a plane, wheelchair and all and although it wasn’t without it’s challenges I felt like we’d really achieved something.


Undiagnosed Childrens’ Day Instagram Challenge

Day 20 “What I’m having for lunch”

Today Jacob and I spent the morning at the hospital for an appointment with developmental psychiatry. An ECG and blood test was recommended and as I couldn’t face coming back in a few days (parking for one reason) I decided to power through and get it done today.  (He was very brave, if somewhat confused!)  So by the time we left it was certainly lunchtime.  After a weekend of too much chocolate and my very sludgy run last night, I thought we should have something nearly healthy!  Needless to say his didn’t touch the sides!

Undiagnosed Childrens’ Day Instagram Challenge

Day 15 (late!) “my Hero”

I’ve swapped things about a bit, and I’m a day late on account of the bank holiday.  Here’s Jacob and his Daddy who’s funnier and altogether more entertaining than me.  Jacob’s hero, who manages to keep him calm and step in when I can’t stay calm either!

Undiagnosed Childrens Day Instagram Challenge

Day 13 “What’s in your bag?”

This is Jacobs bag.  We try to be prepared when we take him out so although he’s 13 years old he has a change of clothes, pads, drink, a small toy,  chewy tube, the Rada key (disabled toilets are often locked) and baby wipes.  I think I’ll always keep baby wipes handy. I’ve been know to clean my whole car interior with baby wipes!  Jacob often has ear defenders with him.  He can easily become overwhelmed when he first enters a new environment.  Sometimes ear defenders help…Sometimes they don’t.  The Ipad isn’t for playing games, we’re trying a new communication app out, but it’ll be a long time before Jacob has any chance of using it purposefully so  we need to use it with him whenever we can to show him whats possible.


Undiagnosed Childrens’ Day Instagram Challenge

Day 11 “What I had for breakfast”

Jacobs got a huge appetite, but then it’s hard work being him.  He’s never still.  His very particular combination of Sensory Processing Disorder and ADHD means he never stops moving, unless hes asleep.  Even the process of falling asleep involves patting, chewing and fidgeting.  So he needs a good brekkie.  Two weetabix (chocolate if possible) yogurt and banana.  At the weekend he often has a second breakfast too, a fried egg  sandwich chaser goes down well!

Undiagnosed Childrens’ Day Challenge

Day  10 “To Do List”

I have a book, and it all goes in the book.  Whether it’s a work meeting, a Jacob meeting or meal plan , it’s all in there. It’s my Book of knowledge. Every few days I collate a list. If it’s not on the list it’s not going to happen.  I’m a good procrastinator but somehow the thought of crossing something off the list is motivation in itself to get it done.  I tend to do the Jacob stuff in chunks, especially the “chasing up”.  I sometimes can’t stand to leave another message for that person not to get back to me, so admittedly I put it off.  When I’m in a better frame of mind I get back on it.  It’s a strategy I’ve developed to stop me getting too cross to speak to anyone sensibly!