Undiagnosed Childrens’ Day Instagram Challenge

Day 23 “A Challenge”

Right so I’m a bit behind!  Anyway last night I was getting ready for my twice weekly 5K run.  I’m not a “natural athletic type” I wish I was, I’m more your walking, horse riding, being outdoors type…. And then your lying on the sofa with a beer and a box set type!  But, although I only sort of enjoy it… at a push,  feel better after I’ve run, so I’ve decided it’s just what I do to look after myself feel less irritable and sleep better.

(I’ve really enjoyed being part of ParkRun every Saturday morning)

Undiagnosed Childrens’ Day Instagram Challenge

Day 22 Family

We don’t have many photos of us altogether, something I need to work on I think!  This was taken nearly 8 years ago in Spain.  It was our first “go” at taking Jacob on a plane, wheelchair and all and although it wasn’t without it’s challenges I felt like we’d really achieved something.

 

Undiagnosed Childrens’ Day Instagram Challenge

Day 14 “Medication”

Medication is a difficult one for Jacob.  It’s hard to diagnose his symptoms because he learning disability is so profound so obviously that makes treating him a tricky business.  He doesn’t react in the expected way to drugs either.  Respiridone is quite a “sledge hammery” sort of med, but it works well for him.  We tried a couple of other most subtle medications but they made him feel worse…..And when I say feel worse, well we don’t actually know how they made him feel cos he can’t tell us. But his behavior was worse and he obviously wasn’t happy! So yeh, bit of a try it and see job really!

 

Undiagnosed Childrens Day Instagram Challenge

Day 13 “What’s in your bag?”

This is Jacobs bag.  We try to be prepared when we take him out so although he’s 13 years old he has a change of clothes, pads, drink, a small toy,  chewy tube, the Rada key (disabled toilets are often locked) and baby wipes.  I think I’ll always keep baby wipes handy. I’ve been know to clean my whole car interior with baby wipes!  Jacob often has ear defenders with him.  He can easily become overwhelmed when he first enters a new environment.  Sometimes ear defenders help…Sometimes they don’t.  The Ipad isn’t for playing games, we’re trying a new communication app out, but it’ll be a long time before Jacob has any chance of using it purposefully so  we need to use it with him whenever we can to show him whats possible.

 

Undiagnosed Childrens Day Instagram Challenge

Day 12 “A favorite Treat”

It doesn’t get much better than a Jaffa Cake for Jacob. Except perhaps a Cadburys Mini Roll.  He can eat each of them in one go given the chance and sometimes its a race to get the wrapper off a mini roll.  We thought he shoved so much food in his mouth at once because he was always hungry, and although I think most of the time he is, an OT explained its do with his Sensory Processing Disorder.  Because he is sensory seeking he is actually filling his mouth so he can feel it properly…. Well, that’s what he’d have us believe!

 

Undiagnosed Childrens’ Day Instagram Challenge

Day 9 “My favorite Pajamas”

Jacob needs fairly warm PJs all year round as he often finds his way out from under his duvet.  He doesn’t have the understanding to cover himself over , or the skills required to do so.  He’s not really bothered about his soft toys either.  Apart from his Leapfrog Scout, his Gruffalo and this stripey bear that Charlotte gave him.  He doesn’t cuddle them, but he spends a lot of time and concentration bending the arms backwards and forward, it’s and important business…. And chewing them, he loves to chew!

Undiagnosed Childrens’ Day Instagram Challenge

Day 7  “A Favorite thing”

this is Jacob today playing with his very favorite toy, his fish bowl.  He first discovered it 12 years ago when his portage worker brought it round to ours in a bag of magic toys I thought at the time might help him “catch up”.  (rolls eyes at my own naivety!)  Anyway, right from the start he was fascinated by this toy and loved to just put his hand in and out.  He’s always had this thing about depth, exploring it and trying to get his head around it.  Obviously Fisher Price had long since stopped making them so we found one on Ebay. It’s gentle crashing wave sound and inoffensive music and lights have been part of our everyday lives for over a decade.   Eventually this one gave up, worn out by the constant attention, and we hunted for another.  We found it…Eventually…in France…broken! But once here, a work colleague managed to mend it and here it is.