Undiagnosed Childrens’ Day Instagram Challenge

Day 23 “A Challenge”

Right so I’m a bit behind!  Anyway last night I was getting ready for my twice weekly 5K run.  I’m not a “natural athletic type” I wish I was, I’m more your walking, horse riding, being outdoors type…. And then your lying on the sofa with a beer and a box set type!  But, although I only sort of enjoy it… at a push,  feel better after I’ve run, so I’ve decided it’s just what I do to look after myself feel less irritable and sleep better.

(I’ve really enjoyed being part of ParkRun every Saturday morning)

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Undiagnosed Childrens’ Day Instagram Challenge

Day 22 Family

We don’t have many photos of us altogether, something I need to work on I think!  This was taken nearly 8 years ago in Spain.  It was our first “go” at taking Jacob on a plane, wheelchair and all and although it wasn’t without it’s challenges I felt like we’d really achieved something.

 

Undiagnosed Childrens’ Day Instagram Challenge

Day 20 “What I’m having for lunch”

Today Jacob and I spent the morning at the hospital for an appointment with developmental psychiatry. An ECG and blood test was recommended and as I couldn’t face coming back in a few days (parking for one reason) I decided to power through and get it done today.  (He was very brave, if somewhat confused!)  So by the time we left it was certainly lunchtime.  After a weekend of too much chocolate and my very sludgy run last night, I thought we should have something nearly healthy!  Needless to say his didn’t touch the sides!

Undiagnosed Childrens’ Day Instagram Challenge

Day 15 (late!) “my Hero”

I’ve swapped things about a bit, and I’m a day late on account of the bank holiday.  Here’s Jacob and his Daddy who’s funnier and altogether more entertaining than me.  Jacob’s hero, who manages to keep him calm and step in when I can’t stay calm either!

Undiagnosed Childrens’ Day Instagram Challenge

Day 14 “Medication”

Medication is a difficult one for Jacob.  It’s hard to diagnose his symptoms because he learning disability is so profound so obviously that makes treating him a tricky business.  He doesn’t react in the expected way to drugs either.  Respiridone is quite a “sledge hammery” sort of med, but it works well for him.  We tried a couple of other most subtle medications but they made him feel worse…..And when I say feel worse, well we don’t actually know how they made him feel cos he can’t tell us. But his behavior was worse and he obviously wasn’t happy! So yeh, bit of a try it and see job really!

 

Undiagnosed Childrens Day Instagram Challenge

Day 13 “What’s in your bag?”

This is Jacobs bag.  We try to be prepared when we take him out so although he’s 13 years old he has a change of clothes, pads, drink, a small toy,  chewy tube, the Rada key (disabled toilets are often locked) and baby wipes.  I think I’ll always keep baby wipes handy. I’ve been know to clean my whole car interior with baby wipes!  Jacob often has ear defenders with him.  He can easily become overwhelmed when he first enters a new environment.  Sometimes ear defenders help…Sometimes they don’t.  The Ipad isn’t for playing games, we’re trying a new communication app out, but it’ll be a long time before Jacob has any chance of using it purposefully so  we need to use it with him whenever we can to show him whats possible.

 

Undiagnosed Childrens Day Instagram Challenge

Day 12 “A favorite Treat”

It doesn’t get much better than a Jaffa Cake for Jacob. Except perhaps a Cadburys Mini Roll.  He can eat each of them in one go given the chance and sometimes its a race to get the wrapper off a mini roll.  We thought he shoved so much food in his mouth at once because he was always hungry, and although I think most of the time he is, an OT explained its do with his Sensory Processing Disorder.  Because he is sensory seeking he is actually filling his mouth so he can feel it properly…. Well, that’s what he’d have us believe!