Undiagnosed Childrens’ Day Instagram Challenge

Day 17 “My day out”

Trent Embankment is a pretty good walk for Pickle.  It’s flat and long enough for him to get going  and there’s enough going on the hold his interest (boats, bridges and a few cars) but not so many things to over stimulate him.  The only downside is the open water of the River Trent! He can’t use a scooter with out a lot of help so he has this one which is large enough for both my boys to use together.  On the down hill bits, I’ve found it’s best not to watch!

 

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Undiagnosed Childrens Day Instagram Challenge

Day 16 “My Hero” Extra

Jacob’s lucky to have a lot of special people in his life.  These are my best mate’s kids Little G and HP.  Both have known him since he was a baby and he loves them like a brother and sister.  When he sees them he almost implodes with excitement.  Their kindness and patience has been amazing to witness as they’ve grown up together.  X

Undiagnosed Childrens’ Day Instagram Challenge

Day 15 (late!) “my Hero”

I’ve swapped things about a bit, and I’m a day late on account of the bank holiday.  Here’s Jacob and his Daddy who’s funnier and altogether more entertaining than me.  Jacob’s hero, who manages to keep him calm and step in when I can’t stay calm either!

Undiagnosed Childrens’ Day Instagram Challenge

Day 14 “Medication”

Medication is a difficult one for Jacob.  It’s hard to diagnose his symptoms because he learning disability is so profound so obviously that makes treating him a tricky business.  He doesn’t react in the expected way to drugs either.  Respiridone is quite a “sledge hammery” sort of med, but it works well for him.  We tried a couple of other most subtle medications but they made him feel worse…..And when I say feel worse, well we don’t actually know how they made him feel cos he can’t tell us. But his behavior was worse and he obviously wasn’t happy! So yeh, bit of a try it and see job really!

 

Undiagnosed Childrens Day Instagram Challenge

Day 13 “What’s in your bag?”

This is Jacobs bag.  We try to be prepared when we take him out so although he’s 13 years old he has a change of clothes, pads, drink, a small toy,  chewy tube, the Rada key (disabled toilets are often locked) and baby wipes.  I think I’ll always keep baby wipes handy. I’ve been know to clean my whole car interior with baby wipes!  Jacob often has ear defenders with him.  He can easily become overwhelmed when he first enters a new environment.  Sometimes ear defenders help…Sometimes they don’t.  The Ipad isn’t for playing games, we’re trying a new communication app out, but it’ll be a long time before Jacob has any chance of using it purposefully so  we need to use it with him whenever we can to show him whats possible.

 

Undiagnosed Childrens Day Instagram Challenge

Day 12 “A favorite Treat”

It doesn’t get much better than a Jaffa Cake for Jacob. Except perhaps a Cadburys Mini Roll.  He can eat each of them in one go given the chance and sometimes its a race to get the wrapper off a mini roll.  We thought he shoved so much food in his mouth at once because he was always hungry, and although I think most of the time he is, an OT explained its do with his Sensory Processing Disorder.  Because he is sensory seeking he is actually filling his mouth so he can feel it properly…. Well, that’s what he’d have us believe!

 

Undiagnosed Childrens’ Day Instagram Challenge

Day 11 “What I had for breakfast”

Jacobs got a huge appetite, but then it’s hard work being him.  He’s never still.  His very particular combination of Sensory Processing Disorder and ADHD means he never stops moving, unless hes asleep.  Even the process of falling asleep involves patting, chewing and fidgeting.  So he needs a good brekkie.  Two weetabix (chocolate if possible) yogurt and banana.  At the weekend he often has a second breakfast too, a fried egg  sandwich chaser goes down well!